Personal Stories

 

 

 

 

 

 

 


 


Personal Stories - Matt's Story

I am going to share my experience and hope. Forgive me if I give advice or offend, as I'm quite passionate about my own recovery.

To start with, I did not realise that gradually my Body Dysmorphic Disorder had changed me into someone that I didn't want to be. A person who was at odds with himself and his fellow man. I found it easier to stay in my room and look at, and pick at, the scars on my face, than to go outside the house with family or friends. One of the things I used to do was to keep looking at my scars in the mirror until they became out of focus because of my eyes getting tired. Looking from different angles and not wanting to blink, I was drawn to the things that I hated and it caused me a lot of distress. It felt as if the mirror would drag me towards it and scream ugly names at me. I skin picked and caused scars on my face, which later I had cut out unnecessarily with surgery, this caused larger and redder scars. I had on numerous occasions, painful steroid injections into the scar tissue to try to soften them. I had a few laser surgeries to try to reduce the redness of the scars. I filed my own teeth down with a razor to try to make them even. I incessantly dreamt of nose surgery. I constantly thought my arm and leg hair was ugly and dirty and tried to cover it up. I saw uneven ears, uneven nostrils, over developed muscles on one side of my forehead - Just to name a few, and that's not even going into the rituals and tricks that took up hours of my day. Suffice to say I was later diagnosed with BDD.

For many, many years, I tried to keep people from knowing about my pain and thoughts. I isolated myself from people and social events, and lived in a prison of my own making. I never had intimate relationships for fear of rejection because of my defects. If I felt a person had lost interest in me, I made it mean that it had something to do with the way I looked. Most things were a catastrophe in my head and I was very negative towards myself. I would think that I didn't deserve love. I would punish myself, saying that no one would love me, because I have these ugly, grotesque parts of my appearance. I tried to understand in my own way why people lost interest in me, going over every conversation and action or inaction. I was trying to use my insight, not realising that my insight was distorted. Later I came to realise that, unknowingly, I was using my insight to keep myself stuck.

My BDD had become a destructive force in my life. My best efforts resulted in ever greater destruction and despair. At some point, I realised that I needed the help of professionals.

With therapy, I soon came to realise that holding on to these rituals, tricks, safety behaviours and obsessions would eventually sicken me and stop me from taking part in a new way of life. I was told that if I kept entertaining these obsessive thoughts, it would lead me to a worse state. I have learnt that if I let an obsessive thought surge, it maintains its own momentum. If I go along for the ride, in the thick of the flow, the thought fuels itself and it can boggle my mind and alter my mood. If we let our BDD thoughts direct us, it keeps us caged in old behaviours and old fears. The BDD struggles for self-preservation and it is our old, unhealthy mindset the BDD is preserving.

How sincerely I worked at each Cognitive Behavioural Exposure exercise (or what I term a recovery step) was proportionate to my desire for change, this next part was an important one for me.

For a long time, it did seem safer to embrace what I knew than to let go of it for the unknown. I feel many of us with BDD cling to our fears, doubts, self-loathing or hatred because there is a certain security in our familiar pain.

I applied the view that some of my tricks to avoid looking bad were like an addict with drug dependency. I had to realise that it was the first drug (or for me the first ritual), that starts the deadly cycle all over again. Drug addicts try to control their addictions, to 'use in moderation', or to use just 'certain drugs'. None of these control methods work for addicts. I too, had to admit my powerlessness over my rituals. I couldn't substitute one ritual for another. I couldn't have the view that I could do my rituals in moderation. A therapist gave a great example -
"If you have an infected wound and you wipe 90% of the infection away, the infection spreads again."
My therapist told me to view any current or new behaviour in that way - If it was even partly BDD related, e.g. 20% BDD, and 80% a normal appearance concern, then I had to stop doing it because substituting one trick for another was releasing my compulsions all over again.

BDD is great for manipulating the truth. BDD is always a step ahead… I said to my therapist; yes I need help, yes, I am willing to do whatever it takes to stop my rituals/tricks, but in the back of my mind I was like an addict saying that - 'when' I get my life together, then I can handle my drug habits. Or, 'when' I get out of rehab, I can handle the occasional drug. I was effectively saying, yes I can stop my rituals for the time being, but when I'm in a relationship and the person is trusting and knows and accepts my BDD tricks, then I can start them again. Such ways of thinking and acting lead us back to what Narcotics Anonymous call 'active addiction'.

With the shock of someone understanding how BDD works and being read so easily, I came to realise that I had no choice except to completely change my old ways of thinking or go back to using rituals and not living. From that point forward, I began to see that every ritual free day is a successful day, no matter what happens. Surrender means not having to fight anymore. We accept life the way it is. We become willing to do whatever is necessary to stay ritual free, even things we don't like doing.

I had to learn, and did learn, that I was growing when I made new mistakes instead of repeating old ones.

Rebellion against Cognitive Behaviour Therapy and exposures can produce indifference or intolerance. But, rebellion and indifference when doing CBT will be costly, costly to your development and costly financially. This can be overcome with persistent effort.

I came to know myself through therapy. I found myself growing into a mature consciousness. I began to feel better, as willingness grew into hope. Perhaps for the first time, I saw a vision of my new life. With this in sight, I put my willingness into action and that brought results.

I have come to realise that when someone points out a shortcoming in me, my first reaction doesn't have to be defensive. I have had to realise, and do realise through recovery, that it is ok to have some not so great things about you. In appearance or otherwise, it is ok! Some parts of yourself might be a work in progress, other parts, it is has to be lived with, but constantly thinking about changing a defect keeps the crazy thoughts going.

I examined my actions during the day. Writing them down helped. Writing how I felt and what part I might have played in things that occurred, upset me or made me anxious. These actions can be a defense against the old insanity. I could ask myself if I was being drawn into old BDD patterns of fear. This way I could see if I was setting myself up for trouble.

My recovery from BDD involves much more than simple abstinence from BDD tricks. If we had problems in the past, it is unlikely that simple abstinence will solve our problems. The Recovery process has to be an active change in our ideas and attitudes like cutting down the cognitive distortions, e.g. making things into a catastrophe, mind reading, disqualifying the positive, arbitrary inference etc…

The ability to face problems is necessary to stop the pre-occupations. These pre-occupations are the core of our disorder.
If we allow ourselves to plateau and cling to 'fatal' safety behaviours, we are giving into the symptoms of our disorder. Continually ask yourself, "Would I be doing this if I didn't have BDD?" Moreover, don't let if dictate what you do or don't do. I needed to learn new ways to live, to replace old BDD habits with new ways of living.

I have learnt from experience that a wave of peacefulness washes over me after I have successfully gone through the reduction or elimination of a ritual that was difficult to face. Of course, at first it was hard and anxiety provoking, but when I really kicked the trick, my internal fires died out. That which opposed me was less troubling, maybe even gone. I no longer feel the need to struggle today. Trusting that relief awaits me insures its arrival. "Courage is the price that life exacts for granting peace" (Amelia Earhart)

I am starting to be spirit-filled and I get the feeling my greatest contributions will be discovered now that my BDD has taken a rest.

Our creativity awaits our discovery; we just have to release it from the clutches of our BDD.

Matt